NEDA is committed to supporting research by connecting participants with research studies. The following research opportunities were submitted to NEDA with IRB approval.
Disclaimer: Please note that NEDA shares these studies as an information resource only. This listing does not imply endorsement or recommendation of the studies, the researchers, or the institutions listed. Please direct any questions about the studies to the researchers.
Treatment Based
Anorexia Nervosa
Contact Information
Contact Name: Hazal Gurcan
Email: familytreatment@stanford.edu
Website: https://med.stanford.edu/edresearch/studies.html
Research Setting
Online Survey, Hospital with Separate Setting
Study Period
Start Date: 3/1/2023
End Date: 3/1/2028
IRB Expiration Date: 6/25/2025
Diagnosis Researched
Anorexia Nervosa
Participant Requirements
Gender: All genders
Age: 12-18 years old
Travel: None
Additional Information: Adolescent participant is between the ages of 12 and 18 years of age with DSM-5 AN; Adolescent participant lives with at least one family member; Parents of the adolescent participant are able to read and speak fluent English; Family has access to a computer with a reliable internet connection; Adolescent participant is medically stable for remote, outpatient treatment.
Compensation
None
Study Information
Study Involves: Stanford University is conducting a study on virtual treatments for anorexia nervosa in adolescents. The study will consist of: Randomization to either: Virtual family-based treatment (FBT-V), or Online guided self-help family-based treatment (GSH-FBT). In addition to treatment, participants will complete assessments and questionnaires throughout the course of the study.
Description of Services: With an incidence rate of about 1%, Anorexia Nervosa (AN) is a serious mental disorder associated with high mortality, morbidity, and cost. AN in youth is more responsive to early treatment but becomes highly resistant once it has taken an enduring course. The first-line treatment for adolescents with AN is Family Based Treatment (FBT). While FBT can be delivered using videoconferencing (FBT-V), therapists’ limited availability hampers scalability. Guided self- help (GSH) versions of efficacious treatments have been used to scale and increase access to care. The main aim of this proposed comparative effectiveness study is to confirm that clinical improvements in GSH-FBT are achieved with greater efficiency than FBT-V in generalizable clinical settings.
Contact Information
Contact Name: Dr. Tania Amorim
Email: tamorim@pitt.edu
Study Location: 3459 Fifth Ave, Pittsburgh PA 15217
Website: https://pittplusme.org/studyarms/publicdetails?guid=5ff168c6-d86f-4f71-a2b6-565be3fbea25
Research Setting
Hospital with Separate Setting
Study Period
Start Date: 8/28/2020
End Date: 12/31/2025
IRB Approved
Diagnosis Researched
Anorexia Nervosa
Participant Requirements
Gender: Women
Age: 19-45 years old
Travel: Yes, travel to the University of Pittsburgh (see study location above).
Compensation
Up to $575 & parking or transportation reimbursement
Study Information
Study Involves: Participation includes a screening visit, a baseline visit, four additional outpatient visits, and three 10 minute phone check-ins over the course of eighteen months. Eligible participants will be randomly assigned (like the flip of a coin) to receive either a hormonal skin patch called Climara Pro® or the placebo patch. The placebo patch does not contain any hormones.
Tests and assessments during the study include MRI scans, CT scans, DXA scans, physical exams, medical history, nutritional evaluations, questionnaires, blood draws, and urine samples.
Description of Services:
Anorexia nervosa is an eating disorder that causes a person to eat very little and become extremely thin. Women who have anorexia nervosa can develop a variety of health complications, including significant bone loss that may lead to breaks and fractures. Bone loss in women with anorexia nervosa is caused by hormonal changes related to long-term nutritional deficiencies.
The purpose of the study is to find out if a hormonal skin patch called Climara Pro® can increase bone density in premenopausal women who have anorexia nervosa and bone loss. Climara Pro® is approved by the U.S. Food and Drug Administration (FDA) to treat bone loss and other symptoms in menopausal women, but is not approved to treat bone loss in women with anorexia nervosa.
Contact Information
Contact Name: Anjali Sharma
Email: arsharma@ku.edu
Website: https://care.ku.edu/research
Research Setting
Online Survey
Study Period
Start Date: 5/1/2023
End Date: 6/30/2025
IRB Expiration Date: 9/16/2025
Diagnosis Researched
Anorexia Nervosa, OSFED; Individuals with past history of weight restoration in treatment.
Participant Requirements
Gender: All genders
Age: 13-21 years old
Travel: None
Additional Information: Participants must have attended intensive care in order to restore weight in the past 18 months (i.e. inpatient, residential, partial hospitalization, or intensive outpatient). Participants must now be in regular outpatient care, or seeking outpatient care.
Compensation
Participants will be compensated for each procedure completed as part of the research study. The maximum compensation is $213.50.
Study Information
Description of Services: Do you struggle with feeling anxious or depressed, can’t cope with life stressors, or want to start improving your body image once and for all? We can help! We’re researchers at the University of Kansas and we’re contacting you to let you know about an additional, free, and low-commitment support app. Our app was made in collaboration with teens and young adults (and their caregivers) who have lived experience with an eating disorder. Because we made this app with you and for you, it addresses the problems “underneath” the eating disorder. Things like feeling sad, having bad self-esteem, and trouble coping with stress.
For 12 weeks, you’ll get interactive app content that builds on the skills you’re learning in therapy to help you feel less anxious and depressed, manage life stressors, and improve your body image. The info from your app will be shared with your therapist, which will help them help you better during sessions. You can click this link and see if you’re eligible: https://redcap.link/3s8panxx
Want to participate but don’t have a therapist? Just send us an email. We have a listing of therapists who want to help you, including many low-cost options!
Study Involves: Study procedures include questionnaires, interviews, and downloading and using our mobile phone app to complete weekly surveys. Depending on what group you are randomly assigned to, you will either review 2-3 treatment lessons each week or complete a few daily diary reports each week. Your outpatient therapist will review your survey responses and app content during the study. Use of the mobile app will last 12 weeks, with follow up surveys at 3- and 6- months after the app ends. The risk of participating in this study is no greater than present in routine psychological testing.
Contact Information
Contact Name: Kianna Zucker
Email: kianna.zucker@ucsf.edu
Study Location: 675 18th Street, San Francisco, CA 94107
Website: https://reillylab.ucsf.edu/
Research Setting
Hospital with Separate Setting
Study Period
Start Date: 8/21/2023
End Date: 8/31/2027
IRB Approved
Diagnosis Researched
Anorexia Nervosa
Participant Requirements
Gender: Women
Age: 14-17 years old
Travel: In person visits are located at: 675 18th Street, San Francisco, CA 94107
Compensation
Up to $235 in Amazon gift cards
Study Information
Study Involves: Participants with anorexia nervosa will receive 6 months of family-based treatment at no cost through our clinic at UCSF.
The research component of our study includes:
– A screening call
– A Zoom appointment
– 1-3 meetings in person. Participants with anorexia nervosa will attend an in-person appointment in the first week of treatment, 1 month later, and after 6 months of treatment. During each meeting, teens will be asked to complete self-report questionnaires and some brief computer tasks.
Description of Services: We are recruiting adolescent females aged 14-17 who either struggle with anorexia nervosa and are already receiving care through the UCSF Eating Disorders program, or adolescent females aged 14-17 who have never struggled with an eating disorder or a psychiatric disorder.
Participation in the study will involve completing a brief screening process, attending a Zoom appointment, and 1-3 meetings in person. During each meeting, teens will be asked to complete self-report questionnaires and some brief tasks.
Participants can earn between $95 – $235 for participation in the study.
Participants struggling with anorexia nervosa will receive up to 6 months of psychotherapy at no cost with members of our team.
For more information, contact ReillyLab@ucsf.edu!
VIBRANT Study (Virtual Interventions to Bolster Recovery following Anorexia Nervosa Treatment)
Contact Information
Contact Name: Kira Venables
Email: venableskg@vcu.edu
Website: https://redcap.vcu.edu/surveys/?s=JCDPN7XJL8YLTLHH
Research Setting
Online Survey, University/College Counseling Program
Study Period
Start Date: 10/24/2023
End Date: 8/1/2025
IRB Expiration Date: 2/7/2025
Diagnosis Researched
Anorexia Nervosa, Atypical Anorexia.
Participant Requirements
Gender: All genders
Age: 18+
Travel: None
Additional Information: Discharged from intensive treatment (inpatient, residential, PHP, IOP) within the past 6 months
Compensation
$500 total (plus up to $50 in potential bonuses)
Study Information
Study Involves: -Baseline eligibility/assessment visit
-Computer tasks
-24 weekly individual treatment sessions on Zoom
-One week of phone surveys (EMA) before and after completing the study treatment
-Mid-treatment, end-of-treatment, and follow-up assessment visits
Description of Services:
The REPEAT Lab at Virginia Commonwealth University is seeking adults who have recently been discharged from higher-level care (e.g., residential, inpatient, partial hospitalization, or intensive outpatient programs) for symptoms of anorexia nervosa (e.g., restrictive eating, weight loss, fear of weight gain) to participate in a research study examining a potential new treatment.
The purpose of the study is to compare two different remotely-delivered behavioral interventions on how well they support eating disorder recovery following intensive treatment. All study procedures are conducted virtually. In the first visit, which takes about 4-5 hours to complete remotely, participants complete interviews and questionnaires about eating habits and psychological experiences, have height and blind weight measured, and complete computer tasks. Participants are also asked to complete questionnaires on their mobile phones over one week. After completing assessments, eligible participants will be randomized to receive one of two behavioral interventions designed to bolster recovery following intensive treatment. Each intervention consists of 24 individual, weekly, hour-long sessions conducted online with a mental health practitioner. Participants will remotely complete assessments and have blind weight measured weekly throughout and after intervention sessions to monitor satisfaction and progress. Because this study includes new, experimental interventions, it is possible that not all participants will directly benefit from study participation. Participants can be enrolled in other treatments while in this study. Participants will be compensated up to $500 (plus possible bonuses) for their time.
ARFID (Avoidant Restrictive Intake Disorder)
Contact Information
Contact Name: Hali Boyce
Email: arfidstudy@stanford.edu
Website: https://med.stanford.edu/edresearch/about.html
Research Setting
Hospital with Separate Setting; Online Survey
Study Period
Start Date: 12/1/2020
End Date: 6/30/2025
IRB Expiration Date: 3/25/2025
Diagnosis Researched
ARFID
Participant Requirements
Gender: All genders
Age: 6-12 years old
Travel: None.
Additional Information: Children between the ages 6-12; Child is underweight and has symptoms of ARFID (undereating, picky eating, and/or fearfulness of eating); The family is able to speak English and the child is living with at least one parent (the whole family will be enrolled for treatment); Child is medically stable for outpatient treatment; and the whole family is able to make a 6-month commitment.
Compensation
Participants will be paid $50 upon completion of the study, the end-of-treatment, and the 6-month follow-up assessments and questionnaires for the study. No compensation is provided for completion of the screening.
Study Information
Study Involves: All participants can expect to spend 3 hours for the study screening. Additionally, participants can expect to complete session questionnaires, a one-month assessment, two-month assessment, end-of-treatment assessment, and a 6-month follow-up assessment. For participants randomized to the Family-Based Treatment-ARFID condition, there will be 14 1-hour telehealth sessions that will be conducted weekly over a 4-month period for the entire family, employing the same interventions as standard FBT for other eating disorders. For participants who are randomized to the Manualized Non-Specific Usual Care for ARFID condition, there will be 14 1-hour telehealth sessions that will be conducted weekly over a 4-month period with 5 parent-only meetings and 9 child-only meetings. In the Manualized Non-Specific Usual Care for ARFID condition, sessions are psychoeducational and follow a motivational enhancement approach that is based on a non-directive psychotherapy model used in other trials with eating disorders.
Description of Services:
This study is examining the efficacy and mechanism of family therapy compared to usual care for children between the ages of 6 and 12 who are diagnosed with Avoidant/Restrictive Food Intake Disorder. Preliminary data suggest that family therapy is superior to usual care and that improvement in parental self-efficacy related to feeding their children is the mechanism of treatment. In addition, this study will attempt to identify specific patient groups who respond to family therapy.
Multiple Diagnoses
Contact Information
Contact Name: Janet Lydecker
Email: janet.lydecker@yale.edu
Website: https://linktr.ee/yaleteenpower
Research Setting
Hospital with Separate Setting
Study Period
Start Date: 1/1/2023
End Date: 12/31/2025
IRB Expiration Date: 12/31/2025
Diagnosis Researched
Binge Eating Disorder, Bulimia Nervosa, OSFED
Additional Notes: Teens with higher weight and binge eating and extreme weight control behaviors (purging) – can be subthreshold BN
Participant Requirements
Gender: All genders
Age: 13-19 years old
Travel: None
Additional Information: Parent of child <18 must provide consent and participate in monthly family sessions. Compensation $225 Study Information Study Involves: Interview at beginning and end; monthly surveys; weekly online (zoom) telehealth 1-hour therapy sessions with clinician. Description of Services: We are recruiting adolescents who binge and purge (or go to extremes to lose weight) and have a higher weight. About the treatment: The study treats bulimia nervosa using cognitive behavioral therapy or mindfulness The treatment is delivered by telehealth (zoom) There is no cost to the patient, and no cost to their insurance Treatment lasts 4 months Who to refer: Adolescents (all genders) between 12-19 years old For this study, binge eating is feeling out of control while eating; purging can be many different behaviors including self-induced vomiting, overexercise, fasting, misusing laxatives/diuretics, etc. To see if eligible: The teen or parent can call: (203) 785-7210 or email: teenpower@yale.edu
The teen or parent can review general information: http://m.yale.edu/teenpower
Direct-to-provider: email Dr Lydecker at janet.lydecker@yale.edu
Contact Information
Contact Name: Rachel Vanderkruik
Email: mghthrive@mgb.org
Website: https://womensmentalhealth.org/research/thrive/
Research Setting
Online Survey
Study Period
Start Date: 5/28/2024
End Date: 12/31/2025
IRB Approved
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Pregnant individuals with a history of an eating disorder or disordered eating behaviors, Pica, Rumination disorder (RD).
Participant Requirements
Gender: All genders
Age: 18 years or older
Travel: None.
Additional Information: Participants may be eligible if they are 18 years of age or older, are in the first or second trimester of pregnancy, have a history of an eating disorder or disordered eating behaviors, read and speak English, have a device with a camera, and are willing and able to participate in the study.
Compensation
Participants may be compensated up to $250 for their completion of study procedures.
Study Information
Study Involves: Participants will be asked to answer some brief questions online. If it seems like the study might be a good fit, we will have a phone call to confirm eligibility, answer any questions, and enroll in the study.
Next, participants will complete online study questionnaires. The program will have six weekly 1-hour virtual group sessions.
After completing the 6-week program, participants will complete online study questionnaires. Study participants may also be asked to complete a brief phone interview after the program to receive feedback. They will also complete online study questionnaires at 3-months postpartum and at 6-months postpartum.
Description of Services:
Many people feel unhappy with their bodies, especially during pregnancy. Pregnancy can make people feel worried or upset about their body’s changes. For those who had a history of disordered eating behaviors, these worries might make past eating problems come back. Unfortunately, we don’t have good programs to help with body dissatisfaction and disordered eating during pregnancy or postpartum.
We want to fix this. We have created two programs that aim to help with body image and eating concerns. In this research study, we are testing these programs to see which one is more effective. The main goal is to improve and prevent increased eating disorder symptoms and body dissatisfaction during pregnancy or postpartum.
Contact Information
Contact Name: Tiffany Brown
Email: pride@auburn.edu
Website: https://aub.ie/pridestudy
Study Period
Start Date: 2/28/2025
End Date: 5/29/2026
IRB Expiration Date: 10/15/2025
Diagnosis Researched
Anorexia Nervosa, Binge Eating Disorder, Bulimia Nervosa, OSFED; LGBTQ+ folks with eating disorders
Participant Requirements
Gender: All genders
Age Range: 18-65
Travel: None.
Compensation
Participants will be compensated up to $250 in e-gift cards for completing the study assessments.
Study Information
Study Involves:
Researchers at Auburn University are currently recruiting individuals between the ages of 18-65 to investigate a new virtual eating disorder treatment for LGBTQ+ individuals. This study is remote/virtual and includes completing four interview assessments and questionnaires and 14 online individual therapy sessions. This study will occur over the span of 9 months and is completely voluntary. Participants will be compensated up to $250 in e-gift cards for completing the study.
Description of Services:
To investigate a new virtual eating disorder treatment for LGBTQ+ individuals.
Survey Based
Anorexia Nervosa
Contact Information
Contact Name: Kianna Zucker
Email: kianna.zucker@ucsf.edu
Study Location: 675 18th Street, San Francisco, CA 94107
Website: https://gorrelllab.ucsf.edu/
Research Setting
Hospital with Separate Setting
Study Period
Start Date: 1/21/2021
End Date: 3/31/2026
IRB Approved
Diagnosis Researched
Anorexia Nervosa
Participant Requirements
Gender: All genders
Age: 14-18 years old
Travel: In person visits are located at: 675 18th Street, San Francisco, CA 94107
Compensation
$150 Amazon gift card
Study Information
Study Involves: Participants are randomly assigned to complete either 1 or 2 in-person study visits
In the 1st study visit, all participants complete:
– A short interview with our team
– Computer tasks
-Online surveys
In the 2nd study visit, ~40% of participants:
– Receive an fMRI scan (painless brain scan)
Description of Services: We are recruiting teens (ages 14-18) with anorexia nervosa OR with no history of an eating disorder or a current psychiatric disorder to participate in a neuroimaging study that is exploring how anorexia might be linked to changes in the brain that impact decision-making.
Participants will be randomly selected to attend either one or two in-person study visits. In the first study visit, all participants will complete a short interview, computer tasks, and surveys. Participants who are randomized to a second study visit will undergo a safe, noninvasive fMRI scan.
Participants receive a $150 Amazon gift card for participating. If you or someone else you know might be eligible, or if you have any questions, contact gorrell_lab@ucsf.edu!
Contact Information
Contact Name: Sophia Wolk
Email: sophia.wolk@mssm.edu
Study Location: 53 E 96th Street, Suite 1A, New York, NY 10029
Website: https://www.mountsinai.org/locations/eating-weight-disorders/research
Research Setting
Hospital with Separate Setting
Study Period
Start Date: 5/6/2022
End Date: 4/3/2025
IRB Expiration Date: 3/18/2025
Diagnosis Researched
Anorexia Nervosa; OSFED
Participant Requirements
Gender: All genders
Age: 16-30 years old
Travel: Yes – 53 E 96th Street, Suite 1A, New York, NY 10029
Compensation
Compensation includes $300 for completing all study visits.
Study Information
Study Involves: If you choose to participate, you will be asked to complete a screening visit and two research visits. The screening visit will last about 1 hour, and each research visit will last about 4 hours for a total of approximately 10 hours over the course of 3-4 weeks. These visits include the following: – Consent/Screening Visit – We will ask some questions to determine your eligibility for the study, your height and weight will be measured. If eligible, you will also complete online surveys. – Visits 2 & 3 – These visits both include stimulation (taVNS) for 1 hour, stomach recordings, a shake to drink, and a computer task.
Description of Services:
This research study includes an examination of vagal nerve stimulation (taVNS) on eating behavior and stomach functioning in people who suffer from Anorexia Nervosa. The vagus nerve is a nerve that goes from your brain to your stomach. The device we are using is investigational and has not been explored yet in Anorexia Nervosa and the effect on clinical symptoms. This project includes measurements of eating behavior, facial responses to food-cues, and stomach muscle contractions. Individuals with eating disorders tend to have different stomach sensations than people without eating disorders. The reasons for this are not well understood and may have to do with signals that your body sends from your brain to your stomach. Understanding whether VNS improves eating behaviors can help identify and test new possible treatments for Anorexia Nervosa.
Contact Information
Contact Name: Margaret Westwater
Email: margaret.westwater@yale.edu
Study Location: Yale University Magnetic Resonance Research Center (New Haven, CT)
Website: https://medicine.yale.edu/ycci/trial/gut-brain-signaling-in-anorexia-nervosa/?tab=volunteer
Research Setting
Hospital with Separate Setting
Study Period
Start Date: 11/13/2023
End Date: 6/10/2026
IRB Expiration Date: 6/10/2026
Diagnosis Researched
Anorexia Nervosa
Participant Requirements
Gender: Women
Age: 18-45 years old
Travel: Yes. This study involves two in-person visits to the Magnetic Resonance Research Center at Yale University in New Haven, CT. Travel expenses may be reimbursed.
Additional Information: To be eligible, you should meet the criteria below:
– Female
– 18-45 years old
– Have current symptoms or a diagnosis of anorexia nervosa
– No history of brain injury or neurological conditions
Compensation
You will be compensated up to $240 for your time. Travel expenses may be reimbursed.
Study Information
Study Involves: We are inviting women who are currently suffering with anorexia nervosa symptoms to participate in a brain imaging study on decision-making. You will complete two visits to the Yale University Magnetic Resonance Research Center (New Haven, CT).
At the screening visit, we will collect a blood sample and ask you some questions about your health history. The study visit will involve questionnaires, computer tasks, an MRI scan, and additional blood sampling. Then, we will ask you to complete follow-up surveys at home.
Description of Services: The study procedures are summarized above. Please email margaret.westwater@yale.edu for additional details.
Contact Information
Contact Name: Adanya Johnson
Email: repeat@vcu.edu
Study Location: 203 E. Cary St., Richmond, VA 23219
Website: https://redcap.vcu.edu/surveys/?s=JCDPN7XJL8YLTLHH
Research Setting
University/College Counseling Program
Study Period
Start Date: 9/1/2023
End Date: 9/1/2028
IRB Expiration Date: 9/8/2025
Diagnosis Researched
Anorexia Nervosa; OCD
Participant Requirements
Gender: All genders
Age: 18+
Travel: Participants are required to travel to the CARI Center at Virginia Commonwealth University (located at 203 E. Cary St., Richmond, VA 23219) for an MRI scanning visit. Travel reimbursement may be available. To learn more, contact the study team at repeat@vcu.edu.
Additional Information: Please complete the screening survey linked in the Website section.
Compensation
Participants can receive up to $500 for completing this study (plus potential bonuses for task and survey performance).
Study Information
Study Involves: The REPEAT Lab at Virginia Commonwealth University is currently recruiting adult participants who have symptoms of anorexia nervosa (e.g., restrictive eating, weight loss, fear of weight gain) and healthy adult participants with no history of a psychiatric disorder for a research study. The goal of the study is to understand how decision-making and its underlying brain function differs between individuals with symptoms of anorexia nervosa, those with symptoms of obsessive-compulsive disorder, and people with no history of either disorder. Participants in this study complete 3 study visits over the course of the year. The visits will involve questionnaires and interviews about participants’ mental health and health behaviors (e.g., eating habits), a brief medical screening with height, blind weight, vitals, and blood draw, and computer tasks completed during an fMRI brain scan. Additionally, on 2 occasions between visits, participants will complete online surveys on their smartphone for 2 weeks. Participants can receive up to $500 for completing this study (plus potential bonuses for task and survey performance). Some aspects of the study can be conducted remotely and reimbursement may be available for some travel costs.
For more information, please contact the REPEAT Lab at 804-828-2658 or repeat@vcu.edu, or click here.
Description of Services:
The goal of the study is to understand decision-making and its underlying brain function differs between individuals with symptoms of anorexia nervosa, those with symptoms of obsessive-compulsive disorder, and people with no history of either disorder.
Binge Eating Disorder (BED)
Contact Information
Contact Name: Alexa Krugel
Email: alexa.krugel@mssm.edu
Study Location: 55 W 125th Street Floor 13, New York, NY 10027 and 1470 Madison Avenue, New York, NY 10029.
Website: https://labs.icahn.mssm.edu/bernerlab/
Research Setting
Hospital without Separate Setting
Study Period
Start Date: 12/1/2022
End Date: 11/30/2025
IRB Expiration Date: 8/28/2025
Diagnosis Researched
Binge Eating Disorder; Matched healthy control individuals who do not have eating disorder symptoms
Participant Requirements
Gender: All genders
Age: 18-45
Travel: 2 required in-person visits to 55 W 125th Street Floor 13, New York, NY 10027 and 1470 Madison Avenue, New York, NY 10029.
Additional Information:
In order to participate in the study, you must be:
An Individual in a higher weight body; Right-handed; Fluent in English
Compensation
$230 plus travel reimbursement.
Study Information
Study Involves: Brief phone screening to determine initial eligibility (~20 minutes); clinical interviews via a HIPAA-compliant videoconference (Zoom) or in person (~2.5 hours); in-person screening and assessments (~1.5 hours); online self-report questionnaires and tasks (~1 hour); fMRI brain scan (~2 hours); 2 weeks of daily symptom assessments and tasks (~1 hour and 20 minutes total).
Description of Services:
This research study focuses on an eating disorder called binge-eating disorder (BED). People with this disorder binge eat or experience recurrent episodes of eating an unusually large amount of food and feeling a sense of loss-of-control over their eating. Unfortunately, very little is known about what contributes to the development and maintenance of binge-eating behavior.
Dr. Laura Berner and her colleagues at the Icahn School of Medicine at Mount Sinai are
conducting a study that examines brain activation and eating behaviors in adults with BED and adults who never had an eating disorder using a technology called functional magnetic resonance imaging (fMRI). This study will specifically investigate whether differences in brain activation and behaviors are linked to eating-disorder symptoms. This is not a treatment study, which means that participants will not receive any drugs or forms of therapy during study participation.
Contact Information
Contact Name: Jessica Qiu
Email: jessica.qiu@mssm.edu
Study Location: 55 W 125th Street, Suite 1302, New York, NY 10027
Website: https://labs.icahn.mssm.edu/bernerlab/
Research Setting
Hospital without Separate Setting
Study Period
Start Date: 4/28/2022
End Date: 12/31/2025
IRB Expiration Date: 2/24/2026
Diagnosis Researched
Bulimia Nervosa
Participant Requirements
Gender: Women
Age: 18-45
Travel Requirements: 2 in-person visits are required, but participants will be compensated for one-way travel.
Additional Information: Must be fluent in English
Compensation
Up to $280 plus travel reimbursement
Study Information
Study Involves: If you choose to participate, you will be asked to complete clinical interviews either remotely via a HIPAA-compliant video conference (Zoom) or in person at Mount Sinai that last roughly 2.5 hours; 2 in-person visits, each lasting roughly 1.5 hours; pre- and post-neurofeedback online questionnaires and two weeks of symptom assessments (one week before and one week after the neurofeedback visit (3.5 hours total); and a follow-up remote assessment that lasts roughly 1 hour.
Description of Services:
Previous research has shown that people with BN may have lower activity in a part of the brain called the lateral prefrontal cortex (LPFC) when trying to control their behavior. Research has also shown that the activity of the LPFC can be changed in people who are healthy and people who have other disorders that make it difficult to control their behavior (for example, attention deficit hyperactivity disorder (ADHD)) if they are trained to use certain thought patterns while watching their own LPFC activity in “real time”, called “real-time neurofeedback.” Dr. Laura Berner and her colleagues at the Icahn School of Medicine at Mount Sinai are conducting a study that examines whether this same type of training, using a technology called functional near-infrared spectroscopy (fNIRS), can influence symptoms in bulimia nervosa.
Co-Occurring Conditions
Contact Information
Contact Name: Eric Storch
Email: eric.storch@bcm.edu
Website: http://www.latinostudy.org/
Research Setting
Online Survey, College/University
Study Period
Start Date: 1/1/2022
End Date: 12/31/2026
IRB Expiration Date: 4/26/2026
Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa, Binge Eating Disorder, With co-occurring Obsessive-Compulsive Symptoms (current or in the past).
Participant Requirements
Gender: All genders
Age: 7-89 years old
Travel: None. Interviews are done via Zoom.
Additional Information: To participate in LATINO you must:
Have experienced symptoms of OCD now or in the past (even if you did not seek treatment)
Have at least one grandparent who was born in Mexico, Central America, South America, or the Caribbean.
Be between the ages of 7 and 89 years.
Given the high co-occurrence between symptoms of eating disorders and OCD, we are hoping to recruit individuals who experience both eating disorders and OCD symptoms (either current and/or past) in order to improve the representativeness of our sample, and to understand how certain clinical factors may relate to genetic make-up.
Interested individuals can complete the following link and then will be contacted:
https://redcap.research.bcm.edu/redcap/surveys/?s=4EFT77APTME3MLRA
Compensation
$25 for the one-time assessment
Study Information
Study Involves: The Latin American Trans-ancestry INitiative for OCD genomics (LATINO) is an NIH-funded research study with the goal of identifying factors contributing to the development of OCD in individuals who identify as Latino/Hispanic. It is being conducted by a group of researchers throughout the United States and Latin American countries. The lead sites are at Baylor College of Medicine and the University of North Carolina.
We are recruiting individuals who have had, or think they might have, OCD and are of Latin American/Hispanic ancestry defined as having at least one grandparent who was born in Mexico, Central America, South America, or the Caribbean.
Interested participants will answer questions about their experience with OCD and other problems over a 2 hour ZOOM meeting, and provide a spit sample for DNA (this will be mailed to you).
There are 4 simple steps to sign up for LATINO:
Provide consent for yourself or your minor child
Complete the ~5 minute eligibility survey.
https://redcap.research.bcm.edu/redcap/surveys/?s=4EFT77APTME3MLRA
Someone will reach out to schedule you for an interview (by Zoom, phone or in person)
Send a DNA sample through the mail using our spit kit
We would like to emphasize that you can stop taking part in LATINO at any time.
Description of Services: Obsessive-compulsive disorder (OCD) is a psychological condition impacting approximately 1-2% of the world population. Characterized by distressing intrusive thoughts and unwanted repetitive behaviors, OCD can have wide-reaching implications for both individuals with OCD and their families. While the impacts of this condition are well studied, what causes OCD remains less clear. Current evidence suggests that genetics play a role in the development and maintenance of OCD, however the exact genes and biological mechanisms contributing remain elusive. A better understanding of the role of genetics in this condition would greatly improve the ability to detect and diagnose the disorder while allowing treatments to be tailored to an individual’s unique genetic code. Termed precision medicine, this tailored approach has been explored for various psychological disorders, but genetic research on OCD has lagged behind until recently. Now, there is a worldwide study of OCD genetics with more than 46,000 people with OCD participating. However, this remarkable initiative is limited by almost exclusively representing those of European ancestry (>95% of current participants). This Eurocentric bias in would likely result in OCD genetic findings being more accurate for individuals of European ancestry than other ancestries, thereby contributing to health disparities in potential future applications of genomics in precision medicine.
Recently, an interdisciplinary team led by Drs. James Crowley (University of North Carolina at Chapel Hill) and Eric Storch (Baylor College of Medicine) was funded by the National Institute of Mental Health to carry out an ambitious project to address this lack of diversity. We aim to achieve this by recruiting and obtaining saliva samples for DNA from 5,000 Latino/Hispanic/Brazilian individuals (defined as having at least one Latino/Hispanic/Brazilian grandparent). Including a more diverse sample will further advance our ability to detect, diagnose, and treat individuals of Latino ancestry. Furthermore, mapping the OCD-specific genes for Latinos and comparing the results to those of European ancestry contributes to a more comprehensive and generalizable understanding of the common human genetic code, which will help us understand and treat those of any ancestry.
For Clinicians
Contact Information
Contact Name: Rebecca Boswell
Email: dr.rebecca.boswell@gmail.com
Website: https://upenn.co1.qualtrics.com/jfe/form/SV_bp7FkgVEE8bwYjI
Research Setting
Online Survey
Study Period
Start Date: 1/1/2025
End Date: 4/1/2025
IRB Expiration Date: 6/1/2026
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED
Participant Requirements
Gender: All genders
Compensation
None.
Study Information
Study Involves: Online survey for clinicians
Description of Services:
We are looking for multidisciplinary clinicians who have treatment or research experience with eating disorders, to share their opinions on “hot topics” in eating disorder care. We will be exploring the diagnosis, classification, and treatment of “severe and enduring anorexia”, end of life treatment for “terminal anorexia”, the concept of “food addiction”, and weight bias.
We aim to not only gather your opinion on these hot topics, but to also evaluate any differences in clinician perspectives, based on discipline, years of specialized training, and lived experiences. It should take you approximately 30 minutes to complete the study. To participate you must be at least 18 years old. By participating you will not only be contributing to advancements in the field, but you may also gain some additional insights into these highly contested topics. All data are anonymous.
Contact Information
Contact Name: Agatha Laboe
Email: laboe@wisc.edu
Website: https://redcap.ictr.wisc.edu/surveys/?s=XCJ8MJ7NWPPKKF48
Research Setting
Online Survey
Study Period
Start Date: 3/6/2025
End Date: 5/15/2025
IRB Approved
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED
Participant Requirements
Gender: All genders
Compensation
None
Study Information
Study Involves:
Online survey for Eating Disorders clinicians
Description of Services:
The study seeks to understand clinician practices determining and sharing expected body weights (also known as treatment goal weights, target weights, recovery weights) with patients in eating disorder treatment. Eating disorder clinicians (i.e., mental health providers, dietitians, medical providers) with at least one year of experience treating eating disorders are eligible to participate.
If you are eligible and choose to participate, you will complete an anonymous 20-minute online survey in which you will answer questions about whether, how often, how, and why you determine and/or share expected body weights with your patients with eating disorders. You will also indicate the experience you have treating eating disorders, practice details, therapeutic orientation (when applicable), and personal experiences with disordered eating.
Multiple Diagnoses
Contact Information
Contact Name: Kelly Romano
Email: kromano@umn.edu
Research Setting
Online Survey
Study Period
Start Date: 1/15/2025
End Date: 4/1/2027
IRB Approved
Diagnosis Researched
Binge Eating Disorder, Bulimia Nervosa
Participant Requirements
Gender: All genders
Age: 18-64
Compensation
$150-$170
Study Information
Study Involves:
In the Bio-HEALTH study, participants will do the following for 6 weeks:
(1) answer brief surveys (3-5 minutes per survey) on their smartphones 6 times per day for 6 weeks;
(2) wear a chest-worn sensor (a Polar H10 Holter monitor) that we will mail to them from the time that they wake up to the time that they go to bed during weeks 1 and 6;
(3) complete brief (10-20 minutes) app-guided interventions for 4-weeks (e.g., guided mind-body/deep breathing exercises, etc.).
Participants will receive between $150-$170 to thank them for their time participating in this study!
In order to proceed with this study, please complete the following brief screening survey to see if you are eligible to participate:
https://umn.qualtrics.com/jfe/form/SV_0HQMlNMDg5z1bhk
Description of Services:
The purpose is to improve the understanding of the eating behaviors and heart rate variability of individuals with binge-spectrum eating disorders.
Contact Information
Contact Name: Paige Davis
Email: paigedavis@swin.edu.au
Website: https://tinyurl.com/CarerStudy
Research Setting
Online Survey
Study Period
Start Date: 3/5/2024
End Date: 9/1/2026
This study has received approval from the Swinburne University Human Research Ethics Committee (approval no: 20237264-16530). Expiration date: 9/1/2026.
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Caregivers of young people (aged 25 or younger) with a current or past eating disorder diagnosis
Participant Requirements
Gender: All genders
Age: 18+
Travel: None.
Additional Information: You are eligible to take part in this research project if you:
– Are aged 18+ years old
– Are able to read English
– Identify as the caregiver of a young person (25yrs or younger) with a current or past eating disorder diagnosis
Compensation
None
Study Information
Study Involves: The study involves an online survey that should take no longer than 45 minutes to complete. This can be completed at a place, date, and time suitable to you. You will be asked to respond to basic questions regarding your demographics (e.g., age, gender, relationship to the affected individual), and to provide basic clinical information regarding your young person (e.g., age, gender, clinical diagnosis).
The online survey will also involve a series of measures and questions exploring your experience as a caregiver, the impact of caregiving, and your needs as a caregiver. Upon conclusion of the survey, there will be the opportunity for you to enter your email address to be contacted regarding a follow-up interview and/or trialing the intervention should you be interested.
To participate, please visit:
https://tinyurl.com/CarerStudy
Description of Services:
Researchers at Swinburne University, in partnership with Eating Disorders Families Australia, are seeking volunteers to participate in a research project exploring the experience and impact of caring for a young person with an eating disorder, in addition to caregivers’ needs and experiences.
It is hoped that findings from this study will be used to inform the development of an intervention for caregivers.
Contact Information
Contact Name: Monica Denise Grambusch
Email: mgrambusch@liberty.edu
Website: https://liberty.co1.qualtrics.com/jfe/form/SV_808PFXKH8yWbbUO
Study Period
Start Date: 3/25/2025
End Date: 5/16/2025
IRB Approved
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED
Participant Requirements
Gender: All genders
Age: 18+
Travel: None.
Additional Information:
-Prior diagnosis
-in remission
Compensation
None.
Study Information
Study Involves:
Participants will be asked to complete an anonymous online survey, which should take about 20 minutes.
Description of Services:
The main purpose of this study is to examine the relationship between gratification and eating disorders and variable differences in diagnosed adults. The intent is to answer three research questions; first to assess if there is an association between positive Delay of Gratification scores and diagnosed eating disorders, second, answering if there is a relationship between delay of gratification and eating disorders especially if trends exist with delay of gratification subscales, and finally if there are relationships and associations, to answer if there are differences between different types of eating disorders significantly with delay of gratification factors.
Contact Information
Contact Name: Agatha Laboe
Email: laboe@wisc.edu
Website: https://redcap.ictr.wisc.edu/surveys/?s=LTDDCCWX7FYR4TCR
Research Setting
Online Survey
Study Period
Start Date: 10/5/2024
End Date: 6/15/2025
IRB Approved
Diagnosis Researched
Anorexia Nervosa, Binge Eating Disorder, Bulimia Nervosa, OSFED; Anyone who has restricted food intake due to weight/shape concerns with resulting weight loss in the past year is eligible to participate
Participant Requirements
Gender: All genders
Age Range: 14-26
Travel: None.
Additional Information:
-Restricted food intake due to weight/shape concerns with resulting weight loss in the past year
-Outpatient eating disorder treatment within the past 6 months
-No higher level of care in the past 6 months
Compensation
$20
Study Information
Study Involves:
An online survey for individuals with restrictive eating disorders.
Description of Services:
This study seeks to understand patient perspectives, and factors that influence these perspectives, on discussions of expected body weights (also known as target weights, goal weights, biologically appropriate weights) in eating disorder treatment. Participation entails completing a ~45 minute online survey, answering questions about your relationship with food, your body, and various psychological constructs (e.g., self-compassion, intolerance of uncertainty).
Contact Information
Contact Name: Abby Kinnear
Email: akinnear@uwo.ca
Research Setting
Online Survey
Study Period
Start Date 9/1/2021
End Date: 9/1/2025
Western University REB (#119684) Approval Expiration Date: 10/25/2025
Diagnosis Researched
Anorexia Nervosa; Binge Eating Disorder, Bulimia Nervosa, OSFED
Participant Requirements
Gender: All genders
Age: 16 years and older
Travel: None
Compensation
Participants will have the opportunity to enter their preferred contact information to have approximately a one-in-four chance of winning a “cash prize” of $20. Prizes will be in Canadian currency/exchange rate.
Study Information
Study Involves: This is a 15-25 minute long online survey. Participants will complete demographics questionnaires (e.g., age, gender, treatment history), and then they will complete a new measure which will ask them about the functions of their restriction and/or binge eating.
Description of Services:
The purpose of this study is to develop and validate a self-report measure on the reasons for engaging in eating disorder behaviors (such as binge eating and restricting). Approximately 1,500 participants will be enrolled in this study.
Study Design and Procedure
If you agree to participate, you will indicate consent by clicking a box in the survey. You will then begin the survey that will first ask about demographic information (e.g., age, gender identity). Next, you will be directed to questions about your eating behaviors and asked to complete our measure on the reasons why you engage in the behaviors.
Risks and Discomforts
You may experience distress while answering questions regarding your eating disorder behaviors or other mental health problems. You may choose not to answer any questions and stop the study at any time.
Benefits
You may not benefit directly from this study. However, the study may provide a benefit for society as the information may provide insight into how we can help treat individuals with eating disorders using this new tool.
Voluntary Participation
Your participation in this study is voluntary. You may decide not to be in this study, or to be in the study now and then change your mind later. You may refuse to answer any question you do not want to answer.
Contact Information
Contact Name: Alexandra Kahn
Email: alexkahn2025@u.northwestern.edu
Research Setting
Online Interview
Study Period
Start Date: 12/31/2024
End Date: 4/12/2025
IRB Approved
Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa; Younger sisters of females with anorexia or bulimia
Participant Requirements
Gender: Women
Age: 18-23
Additional Information: College aged, must have lived in the same household as the sibling when they were diagnosed/treated
Compensation
$20
Study Information
Study Involves: Filling out the pre-screening survey and a 60-90 minute interview via Zoom
Description of Services:
My senior thesis project, titled “Experiences of Younger Sisters of Eating Disorder Patients,” seeks to better understand the experiences of younger sisters of eating disorder patients while living in the same household as their sister receiving treatment. The study will focus on the individual’s experience, including their relationships, identity, and mental health. Eligibility for the study is any female-identifying, college-aged individual who has an older sister diagnosed with anorexia or bulimia. Participants will take part in a 60-90 minute interview.
Contact Information
Contact Name: Ellie Vincent
Email: Ellie.Vincent.2022@live.rhul.ac.uk
Research Setting
Online
Study Period
Start Date: 7/25/2024
End Date: 4/25/2025
University Ethics Approved
Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa, OSFED
Participant Requirements
Gender: Women
Age: 60+
Travel: None
Compensation
A shopping voucher.
Study Information
Study Involves: A video call.
Description of Services:
Due to the big gap in research, we are exploring the experiences of older adults with eating disorders. We are interested in hearing the stories of older women to see how these experiences are similar/different to younger populations.
Contact Information
Contact Name: Merve Yazar
Email: m.yazar-2022@hull.ac.uk
Website: https://app.onlinesurveys.jisc.ac.uk/s/hull/schemamodesanddisorderedeating
Research Setting
Community Mental Health, Online Survey
Study Period
Start Date: 5/10/2024
End Date: 9/1/2025
Approval from Faculty of Health Sciences Research Ethics Committee at the University of Hull which accords with the Declaration of Helsinki.
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Any Eating Disorder
Participant Requirements
Gender: All genders
Age: 18+
Travel: None
Compensation
50 £ Amazon voucher
Study Information
Study Involves: Online survey
Description of Services:
The study aims to understand how childhood maltreatment might impact adult thinking and feeling patterns related to eating disorders. You can find the details on the survey link.
Contact Information
Contact Name: Kelly A. Romano
Email: kromano@umn.edu
Please complete the following brief screening survey to see if you are eligible to participate: https://umn.qualtrics.com/jfe/form/SV_3x8GNfmCVHuDcUe
Research Setting
Online Survey
Study Period
Start Date: 6/13/2024
End Date: 6/13/2026
IRB Approved
Diagnosis Researched
Binge Eating Disorder, Bulimia Nervosa, OSFED
Participant Requirements
Gender: All genders
Age: 18-64 years old
Travel: None
Additional Information: Own an Apple- or Android-brand smartphone.
Compensation
Participants will receive between $90-$110 to thank them for their time participating in this study.
Study Information
Study Involves: In this study, participants will be asked to do the following for 14 consecutive days:
(1) Complete 6 brief (3-5 minutes) surveys on their smartphones each day for 14-days.
(2) Wear a chest-worn Holter Monitor throughout each of the 14-days of this study (i.e., during participants’ wakening hours, but not while participants sleep at night). Participants will receive this monitor from our research staff by mail.
Description of Services:
The purpose of this research study is to collect data on health behaviors and heartrate during a 14-day monitoring period. This is a fully remote (virtual) study.
Disclaimer:
GLP-1 (Glucagon-like peptide-1) medications were approved by the FDA to treat Type 2 diabetes and chronic weight management. In many people, these medications reduce feelings of hunger, motivation to eat, and many experience significant and sometimes rapid weight loss.
There is very little research related to the impact GLP-1s have on people with eating disorders. Studies have found mixed findings – some found that it may decrease binge eating episodes for those with binge eating disorder or bulimia nervosa while another study on binge eating disorder found patients didn’t experience any change in their eating disorder behaviors.
There are potential risks for GLP-1s in people experiencing eating disorders, including misuse. Since there is little known about the psychological and physical impact of GLP-1s and eating disorders, it’s critical for researchers to evaluate the experiences of those with an eating disorder diagnosis and their usage of GLP-1 medications.
Contact Information
Contact Name: Morgan Johnson
Email: glp1study@louisville.edu
Website: https://redcap.louisville.edu/redcap/surveys/?s=T4WKM3JE9T9HJ9WF&survey_source=NEDA
Study Period
Start Date: 3/5/2025
End Date: 3/4/2028
IRB Expiration Date: 3/4/2028
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Any diagnosed eating disorder
Participant Requirements
Gender: All genders
Age: 18-65
Travel: None.
Additional Information:
Internet connection and a device that can access the internet.
Compensation
Participants who engage with the main study survey have the option to be entered into a drawing for a $150 gift card.
Study Information
Study Involves:
This study involves answering two online surveys. The first is a prescreening survey to determine eligibility. If a participant is eligible, they may continue on to the main study survey. The total time to complete both surveys is about 15 minutes.
Description of Services:
This research study is aimed at investigating patterns of misuse of prescription weight loss drugs among individuals with eating disorders. This is a one-time data collection of participants’ perspectives of and experiences with glucagon-like peptide-1 (GLP-1) prescription weight loss drugs. The information collected from this study will inform researchers about what people with eating disorders know about GLP-1 drugs, how often they are exposed to marketing and advertising of these drugs, and how they are using these drugs, if at all.
Contact Information
Contact Name: Sophie Kirkham
Email: s.kirkham4@lancaster.ac.uk
Research Setting
Online
Study Period
Start Date: 2/23/2024
End Date: 3/21/2025
IRB Expiration Date: 9/26/2025
Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Any eating disorder or eating difficulty
Participant Requirements
Gender: Men
Age: 18+
Travel: None
Compensation
None.
Study Information
Study Involves: If interested, the study will involve a virtual interview (MS Teams) for approximately 45mins – 1hr. The study involves discussing barriers that have been encountered when seeking support for an eating disorder or eating difficulty.
Description of Services:
The research will be conducted using narrative analysis, allowing participants to share their stories (as much or as little as comfortable) relating to their experiences of seeking support for an eating disorder or difficulty.
List Your Research Study
If you are conducting research and are interested in recruiting participants in the eating disorder community, submit your study to be included in our listing.
